First, we would like to acknowledge the generous involvement of the many CYP, CAPRI and their parents who took the time and displayed the courage to become involved with this project. We are indebted to them for their contribution and wish them all the very best for the future. We acknowledge the fantastic contribution of NHS, Barnardo’s and NSPCC staff in delivering the groups and having the flexibility and dedication to undertake an unfamiliar new programme for this study, as well as all support staff in the services referring to the Young SMILES intervention, without whom the research would not have been possible.
Contributions of authors
Kathryn M Abel (https://orcid.org/0000-0003-3538-8896) (Professor, Psychological Medicine and Reproductive Psychiatry) conceived the study and managed and led both the research team and the trial management team. She also conceived and co-developed the intervention, contributed to publications, prepared the results and data analyses for publication, and led report writing.
Penny Bee (https://orcid.org/0000-0002-5600-0400) (Professor, Mental Health Nursing) conceived and supervised the qualitative analyses and other qualitative aspects of the study. She also contributed to the trial management team and co-authored the qualitative chapters of the report and qualitative papers for publication.
Lina Gega (https://orcid.org/0000-0003-2902-9256) (Reader, Mental Health Nursing and Psychological Therapies) co-led the quantitative studies, supervised the Newcastle research assistant, contributed to the trial management team and co-led preparation of the quantitative data and analyses for publication and report writing.
Judith Gellatly (https://orcid.org/0000-0002-5134-5581) (Research Fellow) was the programme manager. She supervised protocol development, data collection and qualitative data collection, analysed the qualitative findings and co-authored qualitative chapters of the report.
Adekeye Kolade (https://orcid.org/0000-0003-1352-7680) (Research Assistant) undertook quantitative and qualitative interviews, entered quantitative data and organised follow-up contacts. In addition, he analysed qualitative findings, organised and contributed to the trial management team, and contributed to the writing of the report.
Diane Hunter (https://orcid.org/0000-0002-0135-0884) (Manager of Family SMILES Programme) contributed to development of the Young SMILES intervention, managed and advised on NSPCC site working. She also contributed to the trial management team and the writing of the report.
Craig Callender (https://orcid.org/0000-0002-8073-6274) (Research Assistant) undertook quantitative and qualitative interviews, entered quantitative data and organised follow-up contacts and contributed to the writing of the report.
Lesley-Anne Carter (https://orcid.org/0000-0002-1193-8681) (Lecturer in Biostatistics) undertook quantitative data analyses and co-authored biostatistical elements of the report.
Rachel Meacock (https://orcid.org/0000-0001-8933-5058) (Senior Lecturer in Health Economics) co-designed resource use data collection protocol and analysed and authored health economic elements of report.
Peter Bower (https://orcid.org/0000-0001-9558-3349) (Professor in Health Services Research) contributed to trial design, development and the trial management team, as well as to manuscript and report writing.
Nicky Stanley (https://orcid.org/0000-0002-7644-1625) (Professor in Social Work) advised on safeguarding, CYP and parental mental illness, as well as contributing to protocol development, the trial management team and report writing.
Rachel Calam (https://orcid.org/0000-0002-4385-1687) (Professor of Psychology) contributed to the trial management team, protocol development and the writing of the report.
Miranda Wolpert (https://orcid.org/0000-0002-7463-4976) (Professor at Anna Freud Centre and University College London) contributed to protocol and intervention development, supported the children’s groups and dissemination and contributed to the trial management team.
Paul Stewart (https://orcid.org/0000-0002-3058-8787) (NSPCC Business Manager) liaised with NSPCC teams and contributed to the development of the Young SMILES intervention and the trial management team.
Richard Emsley (https://orcid.org/0000-0002-1218-675X) (Professor of Biostatistics) contributed to trial design and protocol development and advised on randomisation procedures and amendments, and was part of the trial management team.
Kim Holt (https://orcid.org/0000-0003-3407-8300) (Professor of Social Work) oversaw the development of recruitment pathways.
Holly Linklater (https://orcid.org/0000-0001-7927-5506) provided overall expertise and guidance on the educational landscape. She advised specifically on aspects of linking with schools and teachers for recruitment and for transporting children to Young SMILES after school.
Simon Douglas (https://orcid.org/0000-0002-1336-0131) (Research Manager) supervised NHS staff in family services for provision of the Young SMILES intervention.
Bryony Stokes-Crossley (https://orcid.org/0000-0002-7265-6223) (Research Assistant) contributed to recruitment and qualitative and quantitative data collection.
Jonathan Green (https://orcid.org/0000-0002-0143-181X) (Professor of Child and Adolescent Mental Health) advised on protocol development and contributed to manuscript and report writing.
Publications
Gellatly J, Bee P, Gega L, Bower P, Hunter D, Stewart P, et al. A community-based intervention (Young SMILES) to improve the health-related quality of life of children and young people of parents with serious mental illness: randomised feasibility protocol. Trials 2018;19:550.
Gellatly J, Bee P, Kolade A, Hunter D, Gega L, Callender C, et al. Developing an intervention to improve the health related quality of life in children and young people with serious parental mental illness. Front Psychiatry 2019;10:155.
Data-sharing statement
We shall make data available to the scientific community with as few restrictions as feasible, while retaining exclusive use until the publication of major outputs. Some of the qualitative secondary data may not be suitable for sharing but these can equally be discussed with the corresponding author.
Patient data
This work uses data provided by patients and collected by the NHS as part of their care and support. Using patient data is vital to improve health and care for everyone. There is huge potential to make better use of information from people’s patient records, to understand more about disease, develop new treatments, monitor safety, and plan NHS services. Patient data should be kept safe and secure, to protect everyone’s privacy, and it’s important that there are safeguards to make sure that it is stored and used responsibly. Everyone should be able to find out about how patient data are used. You can find out more about the background to this citation here: https://understandingpatientdata.org.uk/data-citation.
Disclaimers
This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HTA programme or the Department of Health and Social Care. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HTA programme or the Department of Health and Social Care.