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Library›Open textbooks›Living well with Crohn’s & Colitis fatigue, pain and urgency/faecal incontinence: the IBD-BOOST research programme including an RCT›References

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Living well with Crohn’s & Colitis fatigue, pain and urgency/faecal incontinence: the IBD-BOOST research programme including an RCT · References

References

CC BY 4.0 · National Institute for Health and Care Research · approximately 7 min read

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  2. GBD 2017 Inflammatory Bowel Disease Collaborators. The global, regional, and national burden of inflammatory bowel disease in 195 countries and territories, 1990–2017: a systematic analysis for the Global Burden of Disease Study 2017. Lancet Gastroenterol Hepatol 2020;5:17–30. 10.1016/s2468-1253(19)30333-431648971
  3. Czuber‐Dochan W, Dibley LB, Terry H, Ream E, Norton C. The experience of fatigue in people with inflammatory bowel disease: an exploratory study. J Adv Nurs 2013;69:1987–99. 10.1111/jan.1206023215959
  4. Czuber-Dochan W, Norton C, Bredin F, Darvell M, Nathan I, Terry H. Healthcare professionals’ perceptions of fatigue experienced by people with IBD. J Crohns Colitis 2014;8:835–44. 10.1016/j.crohns.2014.01.00424491516
  5. Dibley L, Norton C. Experiences of fecal incontinence in people with inflammatory bowel disease: self-reported experiences among a community sample. Inflamm Bowel Dis 2013;19:1450–62. 10.1097/mib.0b013e318281327f23624884
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  8. Fawson S, Dibley L, Smith K, Batista J, Artom M, Windgassen S, et al. Developing an online program for self-management of fatigue, pain, and urgency in inflammatory bowel disease: patients’ needs and wants. Dig Dis Sci 2022;67:2813–26. 10.1007/s10620-021-07109-934146202
  9. Matthias C, Fawson S, Yan L, Sweeney L, Moss-Morris R, Norton C. Inflammatory bowel disease nurses’ views on taking on a new role to support an online self-management programme for symptoms of fatigue, pain and urgency: a qualitative study to maximise intervention acceptance. Gastrointest Nurs 2021;19:28–35. 10.12968/gasn.2021.19.9.28
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  13. Roukas C, Syred J, Gordeev V, Norton C, Hart A, Mihaylova B. Development and test–retest reliability of a new, self-report questionnaire assessing healthcare use and personal costs in people with inflammatory bowel disease: the Inflammatory Bowel Disease Resource Use Questionnaire (IBD-RUQ). Frontline Gastroenterol 2022; 14:59–67. 10.1136/flgastro-2022-10218236561790
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  16. Stagg I, Hart A, Cléirigh Büttner F, Fikree A, McLaughlin J, LeBlanc JF, et al. Optimising fatigue, abdominal pain and faecal incontinence in people with inflammatory bowel disease (IBD-BOOST Optimise): feasibility study of a checklist and algorithm for initial nurse-led management. BMJ Open Gastroenterol 2024;11:e001585. 10.1136/bmjgast-2024-001585
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  18. Norton C. Supported online self-management versus care as usual for symptoms of fatigue, pain and urgency/incontinence in adults with inflammatory bowel disease (IBD-BOOST): study protocol for a randomised controlled trial – an update to the published protocol. Trials 2023;24:81. https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-023-07095-536737836
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  20. Norton C, Moss-Morris R, Hart A, Cleirigh Buettner F, Hamborg T, Miller L, et al. A randomised controlled trial of IBD-BOOST, a digital cognitive behavioural self-management programme for fatigue, and/or pain, and/or faecal incontinence in inflammatory bowel disease. J Crohns Colitis 2024;18:i1230–2. 10.1093/ecco-jcc/jjad212.0781
  21. Czuber-Dochan W, Wileman V, Dibley L, Shankavi P, Fatima A, Norton C, et al. Process evaluation findings contradict RCT results of the IBD-BOOST digital self-management intervention for fatigue, pain and faecal urgency in inflammatory bowel disease: a mixed methods study of patient perspectives. Br J Health Psychol 2025;30:e70035. 10.1111/bjhp.7003541236397
  22. Wileman V, Czuber-Dochan W, Moss-Morris R, Dibley L, McGuinness S, Miller L, et al. Supporting patients using a digital self-management intervention for symptoms of fatigue, pain, and urgency/incontinence in Inflammatory Bowel Disease: a mixed methods process evaluation of trial facilitators. PLOS ONE 2026;21:e0350560. 10.1371/journal.pone.035056042284291
  23. Miller L, Hart A, Cléirigh‑Büttner F, Arundel C, Hamborg T, McGuiness S et al. What is the impact on recruitment of a shortened compared with a standard‑length participant information leaflet? PROMETHEUS in IBD‑BOOST: study within a trial, a decentralised UK randomised controlled trial. Trials 2025;26:211. 10.1186/s13063-025-08931-640528252
  24. Honzlova Z, Stagg I, Miller L, Norton C, Moss-Morris R, Sweeney L, Wileman V. The impact of COVID-19 on trial participants’ engagement with IBD-BOOST: a digital cognitive behavioural intervention. Gastrointest Nurs 2024;22:114–22. 10.12968/gasn.2024.22.2.114
  25. Wileman V, McGuinness S, Sweeney L, Norton C, Miller L, Stagg I, et al. Development and preliminary evaluation of a suicidal risk assessment protocol in a randomised controlled trial using the Patient Health Questionnaire (PHQ‑9). Trials 2024;25:1–11. 10.1186/s13063-024-08276-638169391
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← ConclusionsAdditional information →

Attribution. Christine Norton; Ailsa Hart; Rona Moss-Morris; Laura Miller; Qasim Aziz; Fionn Cléirigh Büttner et al. (2026). Living well with Crohn’s & Colitis fatigue, pain and urgency/faecal incontinence: the IBD-BOOST research programme including an RCT. National Institute for Health and Care Research. Copyright © 2026 Norton et al. Licensed under CC BY 4.0. NCBI Bookshelf NBK624087. CC BY 4.0. Original source ↗. Text reproduced from the Bookshelf XML without changing wording; figures, images and supplements are not reproduced.

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