Our application outlined seven planned publications. Dissemination has been ongoing throughout the programme, as evidenced by the 22 papers published or submitted/in progress and presentations at numerous national and international meetings.
To people with IBD: We have presented at three CCUK PPI days (one in person to gain feedback on our research plans, and two online to present results) in addition to the programme summary distributed to all participants who wanted this (we gave an opt-out option) and made freely available via the CCUK website and summarised in their newsletter. We presented the results of the programme to the CCUK annual general meeting in July 2025.
To health professionals: 22 peer-reviewed publications and presentation at numerous conferences.
The survey was published in the survey results paper and is freely available. Survey data will be shared with the IBD BioResource, linked to their members who participated.
The Optimise manual, checklist and algorithm are published in the paper and are available on request and we are developing a nurse training programme to deliver Optimise, funded by an unrestricted educational grant from a pharmaceutical company. We have been assigned by the Intellectual Property to enable this.
The digital landscape has changed since our grant application and it is no longer possible to simply make the intervention freely available via CCUK, as originally intended. Also, given our results of no difference overall from CAU, this does not seem appropriate without further work to improve effects and define target participants (see below).
In addition, we have started to use our work to feed into clinical papers for more generalist audiences.
Paper 21: Chronic abdominal pain in inflammatory bowel disease – a practical guide28
Paper 22: What did we learn from the IBD-BOOST research programme?29