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Library›Open textbooks›Recorded mental health recovery narratives for people with mental health problems and informal carers: the NEON research programme including 3 RCTs›Additional information

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Recorded mental health recovery narratives for people with mental health problems and informal carers: the NEON research programme including 3 RCTs · Additional information

Additional information

CC BY 4.0 · National Institute for Health and Care Research · approximately 30 min read

CRediT contribution statement

Mike Slade (https://orcid.org/0000-0001-7020-3434): Conceptualisation, Data curation, Formal analysis, Funding acquisition, Methodology, Project administration, Supervision, Validation¸ Writing – original draft, Writing – editing and reviewing.

Stefan Rennick-Egglestone (https://orcid.org/0000-0003-4187-011X): Conceptualisation, Data curation, Formal analysis, Methodology, Project administration, Supervision, Validation, Writing – original draft, Writing – editing and reviewing.

Yasmin Ali (https://orcid.org/0000-0002-0228-6562): Formal analysis, Investigation.

Chris Newby (https://orcid.org/0000-0002-2936-8592): Data curation, Formal analysis, Software.

Caroline Yeo (https://orcid.org/0000-0003-3399-4729): Formal analysis, Investigation, Methodology.

James Roe (https://orcid.org/0000-0002-9514-5629): Formal analysis, Investigation, Methodology.

Ada Hui (https://orcid.org/0000-0001-7416-046X): Formal analysis, Methodology.

Ashleigh Charles (https://orcid.org/0000-0003-2222-4358): Formal analysis, Investigation.

Laurie Hare-Duke (https://orcid.org/0000-0003-2145-4557): Formal analysis, Investigation, Methodology.

Luke Paterson (https://orcid.org/0000-0002-1117-0334): Data curation, Formal analysis, Investigation, Methodology, Software.

Sean P Gavan (https://orcid.org/0000-0003-3659-056X): Data curation, Formal analysis, Investigation, Methodology, Software.

Emily Slade (https://orcid.org/0000-0001-6794-5461): Formal analysis, Investigation, Methodology, Software.

Yasuhiro Kotera (https://orcid.org/0000-0002-0251-0085): Formal analysis, Investigation, Methodology.

Stefan Priebe (https://orcid.org/0000-0001-9864-3394): Conceptualisation, Funding acquisition, Methodology, Supervision.

Graham Thornicroft (https://orcid.org/0000-0003-0662-0879): Conceptualisation, Funding acquisition, Methodology, Supervision.

Jeroen Keppens (https://orcid.org/0000-0003-3858-7858): Conceptualisation, Funding acquisition, Methodology.

Rachel Elliott (https://orcid.org/0000-0002-3650-0168): Conceptualisation, Funding acquisition, Methodology, Supervision, Validation.

Kristian Pollock (https://orcid.org/0000-0002-6836-8595): Conceptualisation, Formal analysis, Funding acquisition, Methodology.

Julie Repper (https://orcid.org/0000-0002-7020-3415): Conceptualisation, Funding acquisition.

Dan Robotham (https://orcid.org/0000-0003-2968-2415): Methodology.

Donna Franklin (https://orcid.org/0000-0002-9755-870X): Formal analysis.

Rianna Walcott (https://orcid.org/0000-0002-2261-8616): Formal analysis.

Julian Harrison (https://orcid.org/0000-0003-4868-2605): Formal analysis.

Scott Pomberth (https://orcid.org/0009-0009-0220-8175): Formal analysis.

Melanie Smuk (https://orcid.org/0000-0002-1594-1458): Methodology, Supervision.

Clare Robinson (https://orcid.org/0000-0002-2673-2205): Formal analysis, Methodology, Software, Supervision, Validation.

Tony Glover (https://orcid.org/0009-0000-0144-7427): Software.

Fiona Ng (https://orcid.org/0000-0002-8656-8830): Formal analysis, Investigation, Methodology.

Joy Llewellyn-Beardsley (https://orcid.org/0000-0003-0525-6358): Formal analysis, Investigation, Methodology.

Rose McGranahan: Formal analysis, Investigation, Methodology.

Roger Smith: Formal analysis.

Acknowledgements

The authors acknowledge the contribution of the following secondary care NHS Trusts to the success of our trials: Nottinghamshire Healthcare NHS Foundation Trust, Cornwall Partnership NHS Foundation Trust, Derbyshire Healthcare NHS Foundation Trust, Devon Partnership NHS Foundation Trust, East London NHS Foundation Trust, Leicestershire Partnership NHS Trust, Lincolnshire Partnership NHS Foundation Trust, North East London NHS Foundation Trust, Oxford Health NHS Foundation Trust, Somerset Partnership NHS Foundation Trust, South London and Maudsley NHS Foundation Trust, Sussex Partnership NHS Foundation Trust. The authors acknowledge the contribution of the following organisations to our understanding of mental health recovery narratives: Emerging Proud, OC87 Recovery Diaries (and its successor organisation Recovery Diaries), Recovery Devon, Schizophrenia Oral Histories, Scottish Recovery Network. The authors acknowledge the contribution of all narrators who have donated their narrative to the NEON Collection, and all curators who have organised narrative collections integrated into the NEON study. The authors acknowledge valuable contributions to the NEON study by NEON study group members: Simon Bradstreet, Sue Brown, Felicity Callard, Pim Cuijpers, Larry Davidson, Paul Davis, Marianne Farkas, Steve Gillard, Andrew Grundy, Julian Harrison, David King, Lauren Matthews, Gary Morgan, Hannah Nudds, Dania Quadri, Amy Ramsay, Kara Rimmer, Lian van der Krieke, and Lesley Wells.

Data-sharing statement

Data access is controlled to protect the confidentiality of research participants in the NEON study, and in particular to avoid re-identification through combination of multiple data files. Data will be available on reasonable request, supervised by the study sponsor.

Requests can be denied if the sponsor has reason to believe that the requestor has malicious intent, and while research publications are being generated by the study team or investigators. Only anonymous and pseudonymous elements of the data sets used or analysed during the study will be available. Informed consent information has been retained for audit but will not be shared. Some categories of demographic data will be redacted to avoid re-identification. A data dictionary will be provided when data are released.

Anonymous and pseudonymous research data will be available from the study sponsor until the end of the retention period. After the retention period, availability through the study sponsor or Chief Investigator may be provided at their discretion. Contact the study sponsor through Research@nottshc.nhs.uk, citing the funder’s reference number (RP-PG-0615-20016). To obtain access, an end-user licence must be signed by an authorised representative.

Ethics statement

All research work with human research participants was approved by the HRA, including work to assemble the NEON Collection. We sought approval through three applications to the HRA, which were considered by NHS RECs. Application 1 was for the NEON narrative interviews, and interviews with narrative collection curators. It was given favourable opinion by Nottingham 2 REC (17/EM/0401, 12 December 2017). Application 2 was for all subsequent study research activities other than the evaluation of the NEON trials. It was given favourable opinion by West London and Gene Therapy Advisory Committee REC (18/LO/0991, 9 July 2018). Application 3 was for approval of the NEON trials. It was given favourable opinion by Leicester Central REC (19/EM/0326, 9 December 2019).

Information governance statement

Nottinghamshire Healthcare NHS Foundation Trust was the lead organisation for the NEON study and is committed to handling all personal information in line with the UK Data Protection Act (2018) and the General Data Protection Regulation (EU GDPR) 2016/679. Under the Data Protection legislation, Nottinghamshire Healthcare NHS Foundation Trust is the Data Controller, and you can find out more about how we handle personal data, including how to exercise your individual rights and the contact details for our Data Protection Officer here: www.nottinghamshirehealthcare.nhs.uk/your-information

Disclosure of interests

Full disclosure of interests: Completed ICMJE forms for all authors, including all related interests, are available in the toolkit on the NIHR Journals Library report publication page at https://doi.org/10.3310/PPOG2281.

Primary conflicts of interest: Mike Slade and Stefan Rennick-Egglestone are supported by the NIHR Nottingham Biomedical Research Centre (NIHR203310). James Roe was supported by internal funding from the NIHR Applied Research Collaboration East Midlands. Graham Thornicroft is supported by the NIHR Applied Research Collaboration South London at King’s College Hospital NHS Foundation Trust, and by the UK Medical Research Council. All intellectual property produced by the work is owned by Nottinghamshire Healthcare NHS Foundation Trust. There are no further competing interests to declare.

Publications

Peer-reviewed journal publications

1. Llewellyn-Beardsley J, Rennick-Egglestone S, Callard F, Crawford P, Farkas M, Hui A, et al. Characteristics of mental health recovery narratives: systematic review and narrative synthesis. PLOS ONE 2019;14:e0214678. https://doi.org/10.1371/journal.pone.0214678

2. Rennick-Egglestone S, Morgan K, Llewellyn-Beardsley J, Ramsay A, McGranahan A, Gillard S, et al. Mental health recovery narratives and their impact on recipients: systematic review and narrative synthesis. Can J Psychiat 2019;64. https://doi.org/10.1177%2F0706743719846108

3. Slade M, Rennick-Egglestone S, Blackie L, Llewellyn-Beardsley J, Franklin D, Hui A, et al. Post-traumatic growth in mental health recovery: qualitative study of narratives. BMJ Open 2019;9:e029342. https://doi.org/10.1136/bmjopen-2019-029342

4. McGranahan R, Rennick-Egglestone S, Ramsay A, Llewellyn-Beardsley J, Bradstreet S, Callard F, et al. The curation of mental health recovery narrative collections: systematic review and qualitative synthesis. JMIR Ment Health 2019;6:e14233. https://doi.org/10.2196/14233

5. Llewellyn-Beardsley J, Rennick-Egglestone S, Bradstreet S, Davidson L, Franklin D, Hui A, et al. Not the story you want? Assessing the fit of a conceptual framework characterising mental health recovery narratives. Soc Psychiat Psychiatr Epidemiol 2019;55. https://doi.org/10.1007/s00127-019-01791-x

6. Rennick-Egglestone S, Ramsay A, McGranahan R, Llewellyn-Beardsley J, Hui A, Pollock K, et al. The impact of mental health recovery narratives on recipients experiencing mental health problems: qualitative analysis and change model. PLOS ONE 2019;14:e0226201. https://doi.org/10.1371/journal.pone.0226201

7. Ng F, Charles A, Pollock K, Rennick-Egglestone S, Cuijpers P, Gillard S, et al. The mechanisms and processes of connection: developing a causal chain model capturing impacts of receiving recorded mental health recovery narratives. BMC Psychiatry 2019;19:413. https://doi.org/10.1186/s12888-019-2405-z

8. Rennick-Egglestone S, Elliott R, Smuk M, Robinson C, Bailey S, Smith R, et al. Impact of receiving recorded mental health recovery narratives on quality of life in people experiencing psychosis, people experiencing other mental health problems and for informal carers: Narrative Experiences Online (NEON) study protocol for three randomised controlled trials. Trials 202;21:661. https://doi.org/10.1186/s13063-020-04428-6

9. Llewellyn-Beardsley J, Barbic S, Rennick-Egglestone S, Ng F, Roe J, Hui A, et al. INCRESE: development of an instrument to characterise recorded mental health recovery narratives. J Recov Ment Health 2020;3. URL: https://europepmc.org/article/PMC/PMC7612151

10. Yeo C, Hare-Duke L, Rennick-Egglestone S, Bradstreet S, Callard F, Hui A, et al. The VOICES typology of curatorial decisions in narrative collections of the lived experiences of mental health service use, recovery or madness: qualitative study. JMIR Mental Health 2020;7:e16290. https://doi.org/10.2196/16290

11. Roe J, Brown S, Yeo C, Rennick-Egglestone S, Repper J, Ng F, et al. Opportunities, barriers and enablers to the use of recorded recovery narratives in clinical settings. Front Psychiatry 2020;11. https://doi.org/10.3389/fpsyt.2020.589731

12. Slade M. Management of a high-performing mental health recovery research group. Int J Environ Res Publ Health 2021;18:4007. https://doi.org/10.3390/ijerph18084007

13. Hui A, Rennick-Egglestone S, Franklin D, Walcott R, Llewellyn-Beardsley J, Ng F, et al. Institutional injustice: implications for system transformation emerging from the mental health recovery narratives of people experiencing marginalization. PLOS ONE 2021;16:e0250367. https://doi.org/10.1371/journal.pone.0250367

14. Slade M, Rennick-Egglestone S, Llewellyn-Beardsley J, Yeo C, Roe J, Bailey S, et al. Recorded mental health recovery narratives as a resource for people affected by mental health problems: development of the Narrative Experiences Online (NEON) Intervention. JMIR Form Res 2021;5:e24417. https://doi.org/10.2196/24417

15. Yeo C, Rennick-Egglestone S, Armstrong V, Borg M, Charles A, Hare Duke L, et al. The influence of curator goals on collections of lived experience narratives: qualitative study. J Recov Ment Health 2021;4. URL: https://europepmc.org/article/PMC/PMC7612150

16. Rennick-Egglestone S. Principles for the production and dissemination of recruitment material for three clinical trials of an online intervention. Trials 2021;22:441. https://doi.org/10.1186/s13063-021-05412-4

17. McGranahan R, Jakaite J, Edwards A, Rennick-Egglestone S, Slade M, Priebe S. Living with psychosis without mental health services: a narrative interview study. BMJ Open 2021;11:e045661. https://doi.org/10.1136/bmjopen-2020-045661

18. Yeo C, Rennick-Egglestone S, Armstrong V, Borg M, Franklin D, Llewellyn-Beardsley J, et al. Uses and misuses of recorded mental health lived experience narratives in healthcare and community settings: systematic review. Schizophrenia Bullet 2021;48. https://doi.org/10.1093/schbul/sbab097

19. Ng F, Ibrahim N, Franklin D, Jordan G, Lewandowski F, Fang F, et al. Post-traumatic growth in psychosis: a systematic review and narrative synthesis. BMC Psychiatry 2021;21:607. https://doi.org/10.1186/s12888-021-03614-3

20. Ng F, Newby C, Robinson C, Llewellyn-Beardsley J, Yeo C, Roe J, et al. How do recorded mental health recovery narratives create connection and improve hopefulness? J Ment Health 2022;31:2. https://doi.org/10.1080/09638237.2021.2022627

21. Rennick-Egglestone S, Elliott R, Newby C, Robinson C, Slade M. Impact of receiving recorded mental health recovery narratives on quality of life in people experiencing non-psychosis mental health problems (NEON-O Trial): updated randomised controlled trial protocol. Trials 2022;23:90. https://doi.org/10.1186/s13063-022-06027-z

22. Charles A, Hare-Duke L, Nudds H, Franklin D, Llewellyn-Beardsley J, Rennick-Egglestone S, et al. Typology of content warnings and trigger warnings: systematic review. PLOS ONE 2022;17:e0266722. https://doi.org/10.1371/journal.pone.0266722

23. Llewellyn-Beardsley J, Rennick-Egglestone S, Pollock K, Ali Y, Watson E, Franklin D, et al. ‘Maybe I shouldn’t talk’: the role of power in the telling of mental health recovery stories. Qual Health Res 2022;32. https://doi.org/10.1177/10497323221118239

24. Paterson L, Rennick-Egglestone S, Gavan SP, Slade M, Ng F, Llewellyn-Beardsley J, et al. Development and delivery cost of digital health technologies for mental health: application to the Narrative Experiences Online (NEON) Intervention. Front Psychiatry 2022;13. https://doi.org/10.3389/fpsyt.2022.1028156

25. Hare-Duke L, Charles A, Slade M, Rennick-Egglestone S, Dys A, Bijdevaate D. Systematic review and citation content analysis of the CHIME framework for mental health recovery processes: recommendations for developing influential conceptual frameworks. J Recov Ment Health 2023;6. URL: https://europepmc.org/article/PMC/PMC7614322

26. Gómez Bergin AD, Valentine AZ, Rennick-Egglestone S, Slade M, Hollis C, Hall CL. Identifying and categorizing adverse events in trials of digital mental health interventions: narrative scoping review of trials in the International Standard Randomized Controlled Trial Number registry. JMIR Ment Health 2023;10. https://doi.org/10.2196/42501

27. Kotera, Y, Rennick-Egglestone S, Ng F, Llewellyn-Beardsley J, Ali Y, Newby C, et al. Assessing diversity and inclusivity is the next frontier in mental health recovery narrative research and practice. JMIR Ment Health 2023;10. https://doi.org/10.2196/44601

28. Robinson C, Newby C, Rennick-Egglestone S, Llewellyn-Beardsley J, Ng F, Elliott R, Slade M. Statistical analysis plans for two randomised controlled trials of the Narrative Experiences Online (NEON) Intervention: impact of receiving recorded mental health recovery narratives on quality of life in people experiencing psychosis (NEON) and people experiencing non-psychosis mental health problems (NEON-O). Trials 2023;24. https://doi.org/10.1186/s13063-023-07246-8

29. Llewellyn-Beardsley J, Rennick-Egglestone S, Callard F, Pollock K, Slade M, Edgley A. ‘Nothing’s changed, baby’: how the mental health narratives of people with multiple and complex needs disrupt the recovery framework. SSM: Ment Health 2023;3. https://doi.org/10.1016/j.ssmmh.2023.100221

30. Rennick-Egglestone S. Mental health recovery outside of statutory services – the contribution of public health. Perspect Publ Health 2023;143. https://doi.org/10.1177/17579139231172679

31. Rennick-Egglestone S, Newby C, Robinson C, Yeo C, Ng F, Elliott R, et al. Differences between online trial participants who have used statutory mental health services and those who have not: analysis of baseline data from 2 pragmatic trials of a digital health intervention. J Med Internet Res 2023;25. https://doi.org/10.2196/44687

32. Slade M, Rennick-Egglestone S, Elliott RA, Newby C, Robinson C, Gavan SP, et al.; on behalf of the NEON Study Group. Effectiveness and cost-effectiveness of online recorded recovery narratives in improving quality of life for people with non-psychotic mental health problems: a pragmatic randomized controlled trial. World Psychiatry 2024;23. https://doi.org/10.1002/wps.21176

33. Ng F, Rennick-Egglestone S, Onwumere J, Newby C, Llewellyn-Beardsley J, Yeo C, et al. Pragmatic, feasibility randomised controlled trial of a recorded mental health recovery narrative intervention: Narrative Experiences Online intervention for informal carers (NEON-C). Front Psychiatry 2024;14. https://doi.org/10.3389/fpsyt.2023.1272396

34. Lases MN, Bruins J, Ng F, Rennick-Egglestone S, Llewellyn-Beardsley J, Slade M, et al. Feasibility, validity and reliability of the Dutch translation of INCRESE (INCRESE-NL) inventory to characterize mental health recovery narratives. J Recov Ment Health 2024;7. https://doi.org/10.33137/jrmh.v7i1.39398

35. Ali Y, Rennick-Egglestone S, Llewellyn-Beardsley J, Ng F, Yeo C, Franklin D, et al. Perception and appropriation of a web-based recovery narratives intervention: qualitative interview study. Front Digit Health 2024;6. https://doi.org/10.3389/fdgth.2024.1297935

36. Slade E, Rennick-Egglestone S, Ng F, Kotera Y, Llewellyn-Beardsley J, Newby C, et al. The implementation of recommender systems for mental health recovery narratives: evaluation of usage and performance. JMIR Ment Health 2024;11. https://doi.org/10.2196/45754

37. French B, Babbage C, Bird K, Marsh L, Pelton M, Patel S, et al. Data integrity issues with online studies, an institutional example of a widespread challenge. JMIR Ment Health 2024;11:e58432. https://doi.org/10.2196/58432

38. Slade M, Rennick-Egglestone S, Robinson C, Newby C, Elliott R, Ali Y, et al. Effectiveness and cost-effectiveness of online recorded recovery narratives in improving quality of life for people with psychosis experience (NEON Trial): a pragmatic randomised controlled trial. Lancet Region Health: Europe 2024;47:101101. https://doi.org/10.1016/j.lanepe.2024.101101

Editor-reviewed publications

1. Narrative Experiences Online Lived Experience Advisory Panel. Telling a Story of Mental Health Experiences, a Guide. London: McPin Foundation, 2020. URL: www.researchintorecovery.com/files/Telling%20a%20story%20of%20mental%20health%20experiences_McPin%20Foundation_0.pdf (accessed 28 September 2023).

2. Harrison J. The Importance of the Storyteller’s Identity in Mental Health Narratives. London: McPin Foundation, 24 November 2022. URL: https://mcpin.org/the-importance-of-the-storytellers-identity-in-mental-health-narratives/ (accessed 28 September 2023).

3. Yeo C, Rennick-Egglestone S, Ali Y, Armstrong V, Borg M, Bradstreet S, et al. Mental Health Lived Experience nNarratives: Recommendations for Avoiding Misuses and Adopting Good Practice. Nottingham: Institute of Mental Health; 2023. URL: https://institutemh.org.uk/research/projects-and-studies/completed-studies/neon-good-practice-guidelines (accessed 28 September 2023).

4. Rennick-Egglestone S. Mental health recovery outside of statutory services – the contribution of public health. Editorial for special issue on ‘Recovery outside of mental health services: what can public health contribute?’. Perspect Publ Health 2023;143. https://doi.org/10.1177/17579139231172679

5. Pomberth S. Differences Between Online Trial Participants Who Have Used Statutory Mental Health Services and Who Have Not: My Involvement in a Research Publication. Institute of Mental Health blog series, 3 July 2023. URL: www.institutemh.org.uk/news/blog/differences-between-online-trial-participants-who-have-used-statutory-mental-health-services-and-who-have-not-my-involvement-in-a-research-publication (accessed 28 September 2023).

6. Llewellyn-Beardsley J, Ali Y, Bailey S, Booth S, Davis P, Fox-Yeo C, et al. Lived experience narratives for mental health recovery: the Narrative Experiences Online (NEON) Programme. Nottingham: Institute of Mental Health; 2025. URL: https://institutemh.org.uk/research/projects-and-studies/completed-studies/neon (accessed 28 July 2025).

PhD thesis

Llewellyn-Beardsley J. ‘Not the Story You Want, I’m Sure’: Mental Health Recovery and the Narratives of People from Marginalised Communities. PhD thesis. University of Nottingham. URL: https://eprints.nottingham.ac.uk/73527/ (accessed 28 September 2023).

Press releases

1. Rennick-Egglestone S, Anscombe C. Personal Stories of Mental Illness Can Help Others on the Road to Recovery. Press release published at www.nottingham.ac.uk/news/personal-stories-of-mental-illness on 13 May 2019

2. Rennick-Egglestone S, Abdallah H. Content and Trigger Warnings from 32 Countries and 10 Different Sectors Analyzed to Produce a New Framework of Classification by Theme (Violence, Language, Flashing Lights, etc.) and Media Type. Press release published at www.eurekalert.org/news-releases/950988 on 4 May 2022

3. Rennick-Egglestone S, Anscombe C. Experts Develop a Common Language for Trigger and Content Warnings. Press release published at www.eurekalert.org/news-releases/951278 on 4 May 2022

4. National Institute for Health and Care Research. Mental Health Research Service User and Carer Involvement 2022 Award Winners Announced. 16 May 2022. URL: www.nihr.ac.uk/documents/mental-health-research-service-user-and-carer-involvement-2022-award-winners-announced/30598

5. Institute of Mental Health. NEON Study Wins 2022 Mental Health Research Service User and Care Involvement Award. 16 May 2022. URL: www.institutemh.org.uk/news/1531-neon-trial-wins-2022-mental-health-research-service-user-and-care-involvement-award

6. Clinical Research Network. Mental Health Research Service User and Carer Involvement Award. 16 May 2022. URL: https://mailchi.mp/nihr/crn-connect-issue-14931973?e=c1c15f2f23

7. Anscombe C, Rennick-Egglestone S, Slade M. Personal Stories of Overcoming Mental Illness Can Help Others on Similar Paths to Recovery. University of Nottingham Press Office, 22 January 2024. URL: www.nottingham.ac.uk/news/neon-trial-results

8. Rennick-Egglestone S. NEON-O Trial Research Has Been Published in the World Psychiatry. Institute of Mental Health, 2 February 2024. URL: www.institutemh.org.uk/news/1782-neon-o-trial-research-has-been-published-in-the-world-psychiatry

9. Mental Health Recovery Narratives Improve the Quality of Life for Others with Similar Experiences. URL: www.nihr.ac.uk/news/mental-health-recovery-narratives-improve-the-quality-of-life-for-others-with-similar-experiences/35370

Media coverage

1. University of Nottingham. Prescribe yourself a story. Vision Magazine. Publication date not recorded. www.nottingham.ac.uk/vision/vision-prescribe-story

2. Study shows sharing personal mental health stories helps others recover. Happiful.com, 26 January 2024. https://happiful.com/study-shows-sharing-personal-mental-health-stories-helps-others-recover

3. ‘This too shall pass’. World-first study proves the power of mental health recovery stories. Positive News, 29 January 2024. www.positive.news/society/study-proves-power-mental-health-recovery-stories/

Presentations

1. Rennick-Egglestone S. NEON: Personal Experience as a Recovery Resource in Psychosis. NIHR Centre for Primary Care seminar series, Manchester, UK, 5 December 2017. (Invited).

2. Slade M, Robotham D. NEON: Machine Learning and Mental Health Recovery. MindTech Annual Conference, London, UK, 7 December 2017. (Invited).

3. Llewellyn-Beardsley J. Characteristics of Mental Health Recovery Narratives: A Systematic Review and Narrative Synthesis. University of Nottingham Health Humanities Showcase, Nottingham, UK, 16 January 2018.

4. Beardsley J. What is a Mental Health Recovery Story? Annual IMH Research Day, Nottingham, UK, 22 May 2018.

5. Morgan K. The Impact of Recovery Narratives on Others: A Systematic Review and Narrative Synthesis. Annual IMH Research Day, Nottingham, UK, 22 May 2018.

6. Rennick-Egglestone S. Narrative Experiences Online: Connecting People. ‘Visions of the Future’, NHS Wessex, 1 November 2018. (Invited).

7. Llewellyn-Beardsley J. Nine Dimensions of Mental Health Recovery Narratives. Image and Narrative: Illness, Recovery, Change workshop. University of Nottingham, Nottingham, UK, 29 April 2019. (Invited).

8. Yeo C. Ethical Concerns in the Curation of Mental Health Recovery Narratives. Annual IMH Research Day, Nottingham, UK, 21 May 2019.

9. Ng F. Mental Health Recovery Narratives: How Do They Impact People? Annual IMH Research Day, Nottingham, UK, 21 May 2019.

10. Ng F, Rennick-Egglestone S, Ramsay A, Morgan K, Llewellyn-Beardsley J, McGranahan R, Hui A, Booth S, Slade M. How Do Mental Health Recovery Narratives Impact on Others? 13th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH 2019), Lisbon, 6–8 June 2019.

11. Yeo C, McGranahan R, Rennick-Egglestone S, Hui A, Ramsay A, Llewellyn-Beardsley J, Slade M. Ethical Concerns in the Curation of Mental Health Recovery Narratives. 13th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH 2019), Lisbon, 6–8 June 2019.

12. Llewellyn-Beardsley J, Rennick-Egglestone S, Hui A, Pollock K, Ramsay A, McGranahan R, Smith R, Slade M. What is a Mental Health Recovery Narrative? 13th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH 2019), Lisbon, 6–8 June 2019.

13. Smith R, Robotham D, Rennick-Egglestone S, Slade M. Practical Considerations for Mental Health Recovery Narrators. 13th International Conference of the European Network for Mental Health Service Evaluation Conference (ENMESH 2019), Lisbon, 6–8 June 2019.

14. Llewellyn-Beardsley J, Hui A, Rennick-Egglestone S. The characteristics of Mental Health Recovery Narratives. Refocus on Recovery 2019, Nottingham, UK, 3–5 September 2019.

15. Rennick-Egglestone S, Ramsay A, Thornicroft G, Slade M. A Change Model for the Impact of Mental Health rRecovery Narratives. Refocus on Recovery 2019, Nottingham, UK, 3–5 September 2019.

16. Ng F, Roe J, Rennick-Egglestone S, Slade M. How do Recovery Narratives Generate Hope and Connectedness? Refocus on Recovery 2019, Nottingham, UK. 3–5 September 2019.

17. Yeo C, Booth S, Duncan K, Slade S. ‘Whose VOICES Are They Anyway?’ The Curation of Mental Health, Madness and Recovery Story Collections. Refocus on Recovery 2019, Nottingham, UK, 3–5 September 2019.

18. Bhogal A, Robotham D, Smith R, Slade M. Practical Considerations for Mental Health Recovery Narrators. Refocus on Recovery 2019, Nottingham, UK, 3–5 September 2019.

19. Hui A, Llewellyn-Beardsley J, Rennick-Egglestone S, Slade M. Institutional Injustice: Learning Through the Recovery Narratives of Marginalised Communities. Refocus on Recovery 2019, Nottingham, UK, 3–5 September 2019.

20. Roe J, Brown S, Rennick-Egglestone S, Slade M. How Can Recorded Recovery Narratives Find a Place in Mental Health Practice? Refocus on Recovery 2019, Nottingham, UK, 3–5 September 2019.

21. Rennick-Egglestone S. NEON: Narrative Experiences Online. Devon Partnership Trustwide Weekly Clinical Education Webinars – Research and Development. Delivered online, 22 September 2020. (Invited).

22. Rennick-Egglestone S. Peer Researchers and the ‘Narrative Experiences Online’ (NEON) Study. Kick-Off Event for the University of Nottingham Association of Peer Researchers, University of Nottingham, Nottingham, UK, 10 October 2019. (Invited).

23. Slade M. Radio interview on All in the mind on BBC Radio 4, 17 November 2020. (Invited).

24. Rennick-Egglestone S. Television interview on BBC South–East Today, 14 January 2021. www.facebook.com/NeonTrials1/videos/169195207952787/ (Invited).

25. Rennick-Egglestone, S. Online Lived Experience Narratives. Mixed Reality Laboratory Seminar Series, Nottingham, UK, 22 January 2021. (Invited).

26. Rennick-Egglestone S. Co-producing the NEON Collection of Recovery Stories. Keynote at Recovery Chapter 2021, Hong Kong, 2 February 2021. (Invited).

27. Rennick-Egglestone S. NEON: Narrative Experiences Online. Lincoln Partnership NHS Foundation Trust Virtual Research Conference, delivered online 22 April 2021.

28. Jordan G, Ng F, Thomas R. Positive, transformational change and growth following a psychosis: Foundations. (Webinar). Mental Health Technology Transfer Center Network, United States of America, 3 November 2021. https://mhttcnetwork.org/centers/new-england-mhttc/product/overview-positive-change-and-post-traumatic-growth-following. (Invited).

29. Jordan G, Ng F, Thomas R. How Clinicians Can Support People as They Experience Positive, Transformational Change and Growth Following a Psychosis. (Webinar). Mental Health Technology Transfer Center Network, United States of America, 17 November 2021. https://mhttcnetwork.org/centers/new-england-mhttc/product/how-clinicians-can-facilitate-positive-change-and-post-traumatic. (Invited).

30. Rennick-Egglestone S. The NEON (Narrative Experiences Online) Intervention. Centre for Implementation Science (King’s College London) Seminar Series, delivered online, 30 November 2021. (Invited).

31. Rennick-Egglestone S. e-Consent in Clinical Trials. East Midlands Clinical Research Network Principle Investigators group, delivered online, 26 January 2022. (Invited).

32. Rennick-Egglestone S. The Narrative Experiences Online (NEON) Intervention. Division of Pharmacy Practice and Policy Weekly Seminar Series, School of Pharmacy, University of Nottingham, delivered online 7 March 2022. (Invited).

33. Rennick-Egglestone S. Uses and Abuses of Mental Health Narratives. Pint of Science, Nottingham, UK, 11 May 2022. (Invited).

34. Ali Y, Rennick-Egglestone S, Franklin D, Llewellyn-Beardsley J, Pollock K, Ng F, Slade M. Perceptions of an Online Collection of Mental Health Recovery Narratives (NEON). Institute of Mental Health Research Conference, Nottingham, UK, 17–18 May 2022.

35. Llewellyn-Beardsley J, Rennick-Egglestone S, Ng F, Ali Y, Slade M, Edgley A. What Is Performative Narrative Analysis and What Can It Tell Us About Mental Health Recovery? Institute of Mental Health Research Conference, Nottingham, UK, 17–18 May 2022.

36. Franklin D, Rennick-Egglestone S, Llewellyn-Beardsley J. Developing an Anti-racism Agenda Within Research. Institute of Mental Health Research Conference, Nottingham, UK, 17–18 May 2022.

37. Ng F, Rennick-Egglestone S, Hui A, Llewellyn-Beardsley J, Franklin D, Charles A, Slade M. Using Mental Health Recovery Narratives to Create Change in Recipients. 14 International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH) 2022, Tel Aviv, Israel, 27–29 June 2022.

38. Rennick-Egglestone S, Bailey S, Booth S, Elliott R, Harrison J, Llewellyn-Beardsley J, Newby C, Ng F, Robinson C, Smith R, Walcott R, Slade M. The Narrative Experiences Online (NEON) Intervention: Development and Clinical Trials. 14th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH) 2022, Tel Aviv, Israel, 27–29 June 2022.

39. Franklin D, Llewellyn-Beardsley J, Rennick-Egglestone S, Slade M. Developing an Anti-Racist Agenda from Lived Experience Involvement Within Health Research. 14th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH) 2022, Tel Aviv, Israel, 27–29 June 2022.

40. Ali Y, Rennick-Egglestone S, Franklin D, Llewellyn-Beardsley J, Pollock K, Ng F, Slade M. Perceptions of a Collection of Recovery Narratives from Two Clinical Trials of the NEON Intervention. 14th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH) 2022, Tel Aviv, Israel, 27–29 June 2022.

41. Yeo C, Rennick-Egglestone S, Ali Y, Armstrong V, Borg M, Bradstreet S, Faulkner A, Franklin D, Llewellyn-Beardsley J, Mottram K, Ng F, Voronka J, Slade M. Mental Health Lived Experience Narratives: Recommendations for Avoiding Misuses. 14th International Conference of the European Network for Mental Health Service Evaluation Conference (ENMESH) 2022, Tel Aviv, Israel, 27–29 June 2022.

42. Ng F, Franklin D, Rennick-Egglestone S, Jordan G, Slade M. What Facilitates Posttraumatic Growth in Experiences of Psychosis? 14th International Conference of the European Network for Mental Health Service Evaluation Conference (ENMESH) 2022, Tel Aviv, Israel, 27–29 June 2022.

43. Llewellyn-Beardsley J. Performative Narrative Analysis and Mental Health Recovery: Telling a Story about Collecting a Story. School of Health Sciences Research Community of Practice Seminar Series, University of Nottingham, delivered online, 15 November 2022. (Invited).

44. Rennick-Egglestone S. What Can We Learn from Publicly Shared Online Accounts of Mental Health Recovery? Presentation to the Turing Institute ‘Data Science for Mental Health’ group, delivered online, 17 November 2022. (Invited).

45. Rennick-Egglestone S. The NEON Study (Narrative Experiences Online): Self-Guided and Recommender System Access to an Online Collection of Mental Health Recovery Narratives – Findings from Two Clinical Trials. NIHR MindTech MIC National Symposium 2022, London, UK, 24 November 2022. (Invited).

46. Rennick-Egglestone S. Spotlight Study – NEON. Lincolnshire Partnership NHS Foundation Trust Research Round Up Session, delivered online, 10 January 2023. (Invited).

47. Rennick-Egglestone S. The NEON Study: Design and Recruitment for Two Clinical Trials of a New Online Mental Health Intervention. School of Health Sciences Research Community of Practice seminar series, University of Nottingham, delivered online 7 February 2023. (Invited).

48. Charles A, Hare-Duke L, Egglestone-Rennick S, Slade M. Content and Trigger Warnings – Systematic Review, University English Conference and Annual General Meeting, London, UK, 14 April 2023. (Invited).

49. Gavan SP, Paterson L, Rennick-Egglestone S, Slade M, Newby C, Ng F, Elliott RE. Mapping between the MANSA Quality of Life Instrument and EQ-5D-3L for Mental Health Problems. Society for Medical Decision Making 2023 – 18th Biennial European Conference, Berlin, Germany, 21–23 May 2023.

50. Gavan SP, Paterson L, Rennick-Egglestone S, Slade M, Newby C, Ng F, Elliott RE. Estimating EQ-5D-3L Utility Values from EQ-5D-5L for People with Mental Health Problems: A Comparison of Methods. Society for Medical Decision Making 2023 – 18th Biennial European Conference, Berlin, Germany, 21–23 May 2023.

51. Gavan SP, Paterson L, Rennick-Egglestone S, Slade M, Newby C, Ng G, Elliott R. Estimating EQ-5D-3L Utility Values from EQ-5D-5L for People with Mental Health Problems: A Comparison of Methods. Society for Medical Decision Making 18th Biennial European Conference, Berlin, Germany, 21–23 May 2023.

52. Rennick-Egglestone S. Building a Collection of Mental Health Recovery Narratives: Ethical and Legal Considerations. Third UK and Ireland Mental Diversity Law Conference, Nottingham, UK, 6–7 June 2023.

53. Llewellyn-Beardsley J and Edgley A. ‘Nothing’s Changed, Baby’: The Centrality of Critical Reflexivity in Decolonising Uses of Mental Health Recovery Narratives. Narrative Matters 2023, Tamperere, Finland, 15–17 June 2023.

54. Ali Y, Rennick-Egglestone S, Llewellyn-Beardsley J, Yeo C, Franklin D, Slade M. Utilisations of an Online Mental Health Recovery Narrative Intervention (NEON). Inaugural International Digital Mental Health and Wellbeing Conference, Belfast, UK, 22–23 June 2022.

55. Rennick-Egglestone S, Llewellyn-Beardsley J, Ng F, Yeo C, Ali Y, Elliott R, Slade M. Learnings from the Narrative Experiences Online (NEON) Programme. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

56. Rennick-Egglestone S. Building a Collection of Mental Health Recovery Narratives: Ethical and Legal Considerations. RRT Collaboration Day, Nottingham, UK, 4 September 2023. (Invited).

57. Rennick-Egglestone S, Ng F, Llewellyn-Beardsley J, Ali Y, Kotera Y, Slade M. The Impact of Narratives Describing Mental Health Recovery. International Health Humanities conference, Derby, UK, 21–23 September 2023.

Posters

1. Hui, A, Ramsay, A, Rennick-Egglestone, S, Llewellyn-Beardsley, J, McGranahan, R, Pollock, K, Thornicroft, G, Slade, M. Recovery Narratives of Marginalised Communities. 13th ENMESH Conference, Lisbon, Portugal, 6–8 June 2019.

2. Rennick-Egglestone S. Principles for the Ethical and Efficient Production and Dissemination of Online Recruitment Material for Health Research Studies. Institute of Mental Health Research Conference, Nottingham, UK, 17–18 May 2022.

3. Ng F, Ibrahim N, Franklin D, Jordan G, Lewandowski F, Rennick-Egglestone S, Newby C, Llewellyn-Beardsley J, Slade M. How Does Posttraumatic Growth Occur in Experiences of Psychosis: A Systematic Review and Narrative Synthesis. Institute of Mental Health Research Conference, Nottingham, UK, 17–18 May 2022.

4. Rennick-Egglestone S, Robinson C, Elliott R, Newby C, Newton S, Slade M. Managing Repeat Registrations by the Same Participant: Principles and Procedures from Two Online Trials of a Web-Based Digital Health Intervention (the NEON Intervention). UK Trial Managers’ Network Annual Conference 2023, Birmingham, UK, 13 June 2023.

5. Ng F, Rennick-Egglestone S, Onwumere J, Newby C, Llewellyn-Beardsley J, Pomberth S, Slade M. Narrative Experiences Online Intervention for Informal Carers (NEON-C) Trial: Is It Feasible and Acceptable? Refocus on Recovery 2023, 6–7 June 2023, Nottingham, UK.

6. Yeo C, Rennick-Egglestone S, Borg M, Klevan T, Voronka J, Slade M. Uses and Misuses of Recorded Mental Health Lived Experience Narratives. Refocus on Recovery 2023, 6–7 June 2023, Nottingham, UK.

7. Roe J, Brown S, Rennick-Egglestone S, Yeo C, Ng F, Slade M. Opportunities, Enablers and Barriers to the Use of Recorded Recovery Narratives in Clinical Settings. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

8. Ali Y, Rennick-Egglestone S, Ng F, Llewellyn-Beardsley J, Yeo C, Franklin D, Slade M. Utilisations of an Online Mental Health Recovery Narrative Intervention (NEON). Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

9. Ali Y, Rennick-Egglestone S, Ng F, Llewellyn-Beardsley J, Yeo C, Franklin D, Slade M. Extending the NEON Impact Model. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

10. Paterson L, Rennick-Egglestone S, Gavan S, Rennick-Egglestone S, Slade M, Llewellyn-Beardsley J, Elliott R. Development and Delivery Cost of Digital Health Technologies for Mental Health: Application to the Narrative Experiences Online Intervention. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

11. Gavan S, Paterson L, Rennick-Egglestone S, Slade M, Newby C, Ng F, Elliott R. Mapping between the MANSA Quality of Life Instrument and EQ-5D-3L for Mental Health Problems Using Data from an Online Randomised Controlled Trial. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

12. Gavan S, Paterson L, Rennick-Egglestone S, Slade M, Newby C, Elliott R. Cost-Effectiveness Analysis of the NEON Intervention for People with Psychosis and Non-Psychosis Mental Health Problems. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

13. Rennick-Egglestone S, Newby C, Robinson C, Llewellyn-Beardsley J, Ng F, Gavan SP, Slade M. Differences between online trial participants who have and have not used secondary care mental health services. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

14. Gavan S, Paterson L, Rennick-Egglestone S, Slade M, Newby C, Elliott R. Cost-Effectiveness Analysis of the NEON Intervention for People with Psychosis and Non-Psychosis Mental Health Problems. ISPOR Europe 2023, Copenhagen, Denmark, 12–15 November 2023.

Debates, panel discussions and workshops

1. Walcott R, Rennick-Egglestone S, Hui A, Robotham D. Mental Health in Art and Research. Instagram live event hosted by the Healthy Brains Global Initiative (HBGI), 11 October 2021. (Invited).

2. Rennick-Egglestone S. Designing Sensitive Digital Health Interventions. Workshop at the Refocus on Recovery 2019 Conference, Nottingham, UK, 3 September 2019. (Invited).

Knowledge transfer events

Knowledge transfer event 1

Knowledge transfer event 1 was delivered through symposia presented at the ENMESH 2019 and Refocus on Recovery 2019 conferences.

Our ENMESH 2019 symposium consisted of the following presentations:

1. Ng F, Rennick-Egglestone S, Ramsay A, Morgan K, Llewellyn-Beardsley J, McGranahan R, Hui A, Booth S, Slade M. How do Mental Health Recovery Narratives Impact on Others? 13th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH 2019), Lisbon, 6–8 June 2019.

2. Yeo C, McGranahan R, Rennick-Egglestone S, Hui A, Ramsay A, Llewellyn-Beardsley J, Slade M. Ethical Concerns in the Curation of Mental Health Recovery Narratives. 13th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH 2019), Lisbon, 6–8 June 2019.

3. Llewellyn-Beardsley J, Rennick-Egglestone S, Hui A, Pollock K, Ramsay A, McGranahan R, Smith R, Slade M. What Is a Mental Health Recovery Narrative? 13th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH 2019), Lisbon, 6–8 June 2019.

4. Smith R, Robotham D, Rennick-Egglestone S, Slade M. Practical Considerations for Mental Health Recovery Narrators. 13th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH 2019), Lisbon, 6–8 June 2019.

Our Refocus on Recovery 2019 symposium consisted of the following presentations:

1. Llewellyn-Beardsley J, Hui A, Rennick-Egglestone S. The Characteristics of Mental Health Recovery Narratives. Refocus on Recovery 2019, Nottingham, UK, 3–5 September 2019.

2. Rennick-Egglestone S, Ramsay A, Thornicroft G, Slade M. A Change Model for the Impact of Mental Health Recovery Narratives. Refocus on Recovery 2019, Nottingham, UK, 3–5 September 2019.

3. Ng F, Roe J, Rennick-Egglestone S, Slade M. How do Recovery Narratives Generate Hope and Connectedness? Refocus on Recovery 2019, Nottingham, UK. 3–5 September 2019.

4. Yeo C, Booth S, Duncan K, Slade S. ‘Whose VOICES Are They Anyway?’ The Curation of Mental Health, Madness and Recovery Story Collections. Refocus on Recovery 2019, Nottingham, UK, 3–5 September 2019.

5. Bhogal A, Robotham D, Smith R, Slade M. Practical Considerations for Mental Health Recovery Narrators. Refocus on Recovery 2019, Nottingham, UK, 3–5 September 2019.

6. Hui A, Llewellyn-Beardsley J, Rennick-Egglestone S, Slade M. Institutional injustice: Learning Through the Recovery Narratives of Marginalised Communities. Refocus on Recovery 2019, Nottingham, UK, 3–5 September 2019.

7. Roe J, Brown S, Rennick-Egglestone S, Slade M. How Can Recorded Recovery Narratives Find a Place in Mental Health Practice? Refocus on Recovery 2019, Nottingham, UK, 3–5 September 2019.

Knowledge transfer event 2

Knowledge transfer event 2 was delivered through a symposium presented at the ENMESH 2022 conference. It consisted of the following presentations:

1. Ng F, Rennick-Egglestone S, Hui A, Llewellyn-Beardsley J, Franklin D, Charles A, Slade M. Using Mental Health Recovery Narratives to Create Change in Recipients. 14th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH2022), Tel Aviv, Israel, 27–29 June 2022.

2. Rennick-Egglestone S, Bailey S, Booth S, Elliott R, Harrison J, Llewellyn-Beardsley J, Newby C, Ng F, Robinson C, Smith R, Walcott R, Slade M. The Narrative Experiences Online (NEON) Intervention: Development and Clinical Trials. 14th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH2022), Tel Aviv, Israel, 27–29 June 2022.

3. Franklin D, Llewellyn-Beardsley J, Rennick-Egglestone S, Slade M. Developing an Anti-Racist Agenda from Lived Experience Involvement Within Health Research. 14th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH2022), Tel Aviv, Israel, 27–29 June 2022.

4. Ali Y, Rennick-Egglestone S, Franklin D, Llewellyn-Beardsley J, Pollock K, Ng F, Slade M. Perceptions of a Collection of Recovery Narratives from Two Clinical Trials of the NEON Intervention. 14th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH2022), Tel Aviv, Israel, 27–29 June 2022.

5. Yeo C, Rennick-Egglestone S, Ali Y, Armstrong V, Borg M, Bradstreet S, Faulkner A, Franklin D, Llewellyn-Beardsley J, Mottram K, Ng F, Voronka J, Slade M. Mental Health Lived Experience Narratives: Recommendations for Avoiding Misuses. 14th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH2022), Tel Aviv, Israel, 27–29 June 2022.

6. Ng F, Franklin D, Rennick-Egglestone S, Jordan G, Slade M. What Facilitates Posttraumatic Growth in Experiences of Psychosis? 14th International Conference of the European Network for Mental Health Service Evaluation conference (ENMESH2022), Tel Aviv, Israel, 27–29 June 2022.

Knowledge transfer event 3

Knowledge transfer event 3 was delivered through a presentation at the Refocus on Recovery 2023 conference, and set of posters providing a retrospective of NEON work. The presentation was:

Rennick-Egglestone S, Llewellyn-Beardsley J, Ng F, Yeo C, Ali Y, Elliott R, Slade M. Learnings from the Narrative Experiences Online (NEON) Programme. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

The posters were:

1. Ng F, Rennick-Egglestone S, Onwumere J, Newby C, Llewellyn-Beardsley J, Pomberth S, Slade M. Narrative Experiences Online Intervention for Informal Carers (NEON-C) Trial: Is It Feasible and Acceptable? Refocus on Recovery 2023, 6–7 June 2023, Nottingham, UK.

2. Yeo C, Rennick-Egglestone S, Borg M, Klevan T, Voronka J, Slade M. Uses and Misuses of Recorded Mental Health Lived Experience Narratives. Refocus on Recovery 2023, 6–7 June 2023, Nottingham, UK.

3. Roe J, Brown S, Rennick-Egglestone S, Yeo C, Ng F, Slade M. Opportunities, Enablers and Barriers to the Use of Recorded Recovery Narratives in Clinical Settings. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

4. Ali Y, Rennick-Egglestone S, Ng F, Llewellyn-Beardsley J, Yeo C, Franklin D, Slade M. Utilisations of an Online Mental Health Recovery Narrative Intervention (NEON). Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

5. Ali Y, Rennick-Egglestone S, Ng F, Llewellyn-Beardsley J, Yeo C, Franklin D, Slade M. Extending the NEON Impact Model. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

6. Paterson L, Rennick-Egglestone S, Gavan S, Rennick-Egglestone S, Slade M, Llewellyn-Beardsley J, Elliott R. Development and Delivery Cost of Digital Health Technologies for Mental Health: Application to the Narrative Experiences Online Intervention. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

7. Gavan S, Paterson L, Rennick-Egglestone S, Slade M, Newby C, Ng F, Elliott R. Mapping between the MANSA Quality of Life Instrument and EQ-5D-3L for Mental Health Problems Using Data from an Online Randomised Controlled Trial. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

8. Gavan S, Paterson L, Rennick-Egglestone S, Slade M, Newby C, Elliott R. Cost-Effectiveness Analysis of the NEON Intervention for People with Psychosis and Non-Psychosis Mental Health Problems. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

9. Rennick-Egglestone S, Newby C, Robinson C, Llewellyn-Beardsley J, Ng F, Gavan SP, Slade M. Differences Between Online Trial Participants Who Have and Have Not Used Secondary Care Mental Health Services. Refocus on Recovery 2023, Nottingham, UK, 6–7 June 2023.

← References

Attribution. Mike Slade; Stefan Rennick-Egglestone; Yasmin Ali; Chris Newby; Caroline Yeo; James Roe et al. (2025). Recorded mental health recovery narratives for people with mental health problems and informal carers: the NEON research programme including 3 RCTs. National Institute for Health and Care Research. Copyright © 2025 Slade et al. Licensed under CC BY 4.0. NCBI Bookshelf NBK618677. CC BY 4.0. Original source ↗. Text reproduced from the Bookshelf XML without changing wording; figures, images and supplements are not reproduced.

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