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Using the Recommended Summary Plan for Emergency Care and Treatment in Primary Care: a mixed methods study · References

References

CC BY 4.0 · National Institute for Health and Care Research · approximately 14 min read

  1. National Council for Palliative Care; National End of Life Care Programme. Advance Decisions to Refuse Treatment. A Guide for Health and Social Care Professionals. London: NHS England; 2013.
  2. Hayhoe B, Howe A. Advance care planning under the Mental Capacity Act 2005 in primary care. Br J Gen Pract 2011;61:e537–41. 10.3399/bjgp11X58859221801576
  3. National Institute of Health and Care Excellence. Chapter 15: Advance Care Planning: Emergency and Acute Medical Care in Over 16s Service Delivery and Organisation. NICE Guideline 94 . London: NICE; 2018.
  4. Gold Standards Framework. Advance Care Planning Online. 2018. URL: www.goldstandardsframework.org.uk/advance-care-planning (accessed 26 April 2023).
  5. Sudore RL, Lum HD, You JJ, Hanson LC, Meier DE, Pantilat SZ, et al. Defining advance care planning for adults: a consensus definition from a multidisciplinary Delphi panel. J Pain Symptom Manage 2017;53:821–32.e1. 10.1016/j.jpainsymman.2016.12.33128062339
  6. Fritz Z, Slowther AM, Perkins GD. Resuscitation policy should focus on the patient, not the decision. BMJ 2017;356:j813. 10.1136/bmj.j81328246084
  7. May C, Myall M, Lund S, Campling N, Bogle S, Dace S, Richardson A. Managing patient preferences and clinical responses in acute pathophysiological deterioration: what do clinicians think treatment escalation plans do? Soc Sci Med 2020;258:113143. 10.1016/j.socscimed.2020.11314332599414
  8. Perkins GD, Hawkes CA, Eli K, Griffin J, Jacques C, Huxley CJ, et al. Recommended summary plan for emergency care and treatment: ReSPECT a mixed-methods study. Health Soc Care Deliv Res 2022;10:1–139. 10.3310/LFPE3627
  9. Findlay G, Shotton H, Kelly K, Mason M. Time to Intervene? A Review of Patients Who Underwent Cardiopulmonary Resuscitation as a Result of an In-hospital Cardiorespiratory Arrest: A Report by the National Confidential Enquiry into Patient Outcome and Death. London: University College London; 2012.
  10. Perkins GD, Griffiths F, Slowther AM, George R, Fritz Z, Sathrley P, et al. Do-Not-Attempt-Cardiopulmonary-Resuscitation Decisions: An Evidence Synthesis. Southampton: NIHR; 2016.
  11. Beach MC, Morrison RS. The effect of do-not-resuscitate orders on physician decision-making. J Am Geriatr Soc 2002;50:2057–61. 10.1046/j.1532-5415.2002.50620.x12473020
  12. Henneman EA, Baird B, Bellamy PE, Faber LL, Oye RK. Effect of do-not-resuscitate orders on the nursing care of critically ill patients. Am J Crit Care 1994;3:467–72. PMID: 7834009.7834009
  13. Chen JL, Sosnov J, Lessard D, Goldberg RJ. Impact of do-not-resuscitation orders on quality of care performance measures in patients hospitalized with acute heart failure. Am Heart J 2008;156:78–84. 10.1016/j.ahj.2008.01.03018585500
  14. Shermon E, Munglani L, Oram S, William L, Abel J. Reducing DNACPR complaints to zero: designing and implementing a treatment escalation plan using quality improvement methodology. BMJ Open Qual 2017;6:e000011. 10.1136/bmjoq-2017-000011
  15. Stockdale C, Trivedi B, Jerome E, Salih S, Huntley C, Cooke E, et al. Implementation of a combined Cardiopulmonary Resuscitation and Treatment Escalation Plan document in a District General Hospital. BMJ Qual Improv Rep 2014;2:w1236. 10.1136/bmjquality.u202653.w1236
  16. Northern Cancer Alliance. Deciding Right Regional Forms. URL: https://northerncanceralliance.nhs.uk/deciding-right/deciding-right-regional-forms (accessed 26 April 2023).
  17. Hawkes CA, Griffin J, Eli K, Griffiths F, Slowther AM, Fritz Z, et al. Implementation of ReSPECT in acute hospitals: a retrospective observational study. Resuscitation 2022;178:26–35. 10.1016/j.resuscitation.2022.06.02035779800
  18. Eli K, Ochieng C, Hawkes C, Perkins GD, Couper K, Griffiths F, Slowther AM. Secondary care consultant clinicians’ experiences of conducting emergency care and treatment planning conversations in England: an interview-based analysis. BMJ Open 2020;10:e031633. 10.1136/bmjopen-2019-031633
  19. Huxley CJ, Eli K, Hawkes CA, Perkins GD, George R, Griffiths F, Slowther AM. General practitioners’ experiences of emergency care and treatment planning in England: a focus group study. BMC Fam Pract 2021;22:128. 10.1186/s12875-021-01486-w34167478
  20. General Medical Council. Guidance for Doctors: Decision Making and Consent. URL: www.gmc-uk.org/ethical-guidance/ethical-guidance-for-doctors/decision-making-and-consent/circumstances-that-affect-the-decision-making-process-continued-3 (accessed 26 April 2023).
  21. NHS England. Universal Pesonalised Care: Implementing the Comprehensive Model. London: NHS England; 2019.
  22. Heslop P, Blair PS, Fleming P, Hoghton M, Marriott A, Russ L. The Confidential Inquiry into premature deaths of people with intellectual disabilities in the UK: a population-based study. Lancet 2014;383:889–95. 10.1016/S0140-6736(13)62026-724332307
  23. van Schrojenstein Lantman-de Valk HMJ, Walsh PN. Managing health problems in people with intellectual disabilities. BMJ 2008;337:a2507. 10.1136/bmj.a250719064601
  24. House A, Bryant L, Russell AM, Wright-Hughes A, Graham L, Walwyn R, et al. Managing with learning disability and diabetes: OK-diabetes – a case-finding study and feasibility randomised controlled trial. Health Technol Assess 2018;22:1–328. 10.3310/hta22260
  25. Kirkendall A, Linton K, Farris S. Intellectual disabilities and decision making at end of life: a literature review. J Appl Res Intellect Disabil 2017;30:982–94. 10.1111/jar.1227027456315
  26. Tuffrey-Wijne I, Bernal J, Jones A, Butler G, Hollins S. People with intellectual disabilities and their need for cancer information. Eur J Oncol Nurs 2006;10:106–16. 10.1016/j.ejon.2005.05.00516213787
  27. Voss H, Vogel A, Wagemans AMA, Francke AL, Metsemakers JFM, Courtens AM, de Veer AJE. Advance care planning in palliative care for people with intellectual disabilities: a systematic review. J Pain Symptom Manage 2017;54:938–60.e1. 10.1016/j.jpainsymman.2017.04.01628797850
  28. Adam E, Sleeman KE, Brearley S, Hunt K, Tuffrey-Wijne I. The palliative care needs of adults with intellectual disabilities and their access to palliative care services: a systematic review. Palliat Med 2020;34:1006–18. 10.1177/026921632093277432552409
  29. Wagemans A, van Schrojenstein Lantman-de-Valk H, Tuffrey-Wijne I, Widdershoven G, Curfs L. End-of-life decisions: an important theme in the care for people with intellectual disabilities. J Intellect Disabil Res 2010;54:516–24. 10.1111/j.1365-2788.2010.01276.x20367746
  30. Coleman JJ, Botkai A, Marson EJ, Evison F, Atia J, Wang J, et al. Bringing into focus treatment limitation and DNACPR decisions: how COVID-19 has changed practice. Resuscitation 2020;155:172–9. 10.1016/j.resuscitation.2020.08.00632827587
  31. Sutton L, Goodacre S, Thomas B, Connelly S. Do not attempt cardiopulmonary resuscitation (DNACPR) decisions in people admitted with suspected COVID-19: secondary analysis of the PRIEST observational cohort study. Resuscitation 2021;164:130–8. 10.1016/j.resuscitation.2021.04.02833961960
  32. Cooke R. Is there a better way to die? The Guardian, 5 July 2020. URL: www.theguardian.com/society/2020/jul/05/is-there-a-better-way-to-die (accessed 4 May 2023).
  33. Nursing and Midwifery Council. Statement on Advance Care Planning During the COVID-19 Pandemic, Including Do Not Attempt Cardiopulmonary Resuscitation (DNACPR). London: Nursing and Midwifery Council; 2020.
  34. British Medical Association, Care Provider Alliance, Care Quality Commission, Royal College of General Practitioners. Joint Statement on Advance Care Planning. 2020. URL: www.cqc.org.uk/news/stories/joint-statement-advance-care-planning (accessed 4 May 2023).
  35. Care Quality Commission. Protect, Respect, Connect: Decisions about Living and Dying Well During COVID-19. London: Care Quality Commission; 2021.
  36. Royal College of General Practice. Ethical Guidance on COVID-19 and Primary Care. URL: https://elearning.rcgp.org.uk/mod/page/view.php?id=10557 (accessed 6 May 2023).
  37. British Medical Association. COVID-19 Toolkit for GPs and GP Practices. July 2020. URL: www.bma.org.uk/advice-and-support/covid-19/gp-practices/covid-19-toolkit-for-gps-and-gp-practices (accessed 4 May 2023).
  38. Fadel MG, Parekh K, Hayden P, Krishnan P. Improving resuscitation decisions: a trust-wide initiative. BMJ Open Qual 2018;7:e000268. 10.1136/bmjoq-2017-000268
  39. Johnson M, Whyte M, Loveridge R, Yorke R, Naleem S. A unified electronic tool for CPR and emergency treatment escalation plans improves communication and early collaborative decision making for acute hospital admissions. BMJ Qual Improv Rep 2017;6:w6626. 10.1136/bmjquality.u213254.w6626
  40. Fritz Z, Malyon A, Frankau JM, Parker RA, Cohn S, Laroche CM, et al. The universal form of treatment options (UFTO) as an alternative to do not attempt cardiopulmonary resuscitation (DNACPR) orders: a mixed methods evaluation of the effects on clinical practice and patient care. PLOS ONE 2013;8:e70977. 10.1371/journal.pone.007097724023718
  41. Lightbody CJ, Campbell JN, Herbison GP, Osborne HK, Radley A, Taylor DR. Impact of a treatment escalation/limitation plan on non-beneficial interventions and harms in patients during their last admission before in-hospital death, using the Structured Judgment Review Method. BMJ Open 2018;8:e024264. 10.1136/bmjopen-2018-024264
  42. Fielden L, Lynch D, Petrie K. A Quantitative and Qualitative Evaluation of the ReSPECT Process in Forth Valley: Scotland’s First ReSPECT Pilot. Edinburgh: NHS Forth Valley; 2019.
  43. Kesten JM, Redwood S, Pullyblank A, Tavare A, Pocock L, Brant H, et al. Using the recommended summary plan for emergency care and treatment (ReSPECT) in care homes: a qualitative interview study. Age Ageing 2022;51:afac226. 10.1093/ageing/afac22636273344
  44. May C. Towards a general theory of implementation. Implement Sci 2013;8:18. 10.1186/1748-5908-8-1823406398
  45. Gallacher K, May CR, Montori VM, Mair FS. Understanding patients’ experiences of treatment burden in chronic heart failure using normalization process theory. Ann Fam Med 2011;9:235–43. 10.1370/afm.124921555751
  46. Hawkes CA, Fritz Z, Deas G, Ahmedzai SH, Richardson A, Pitcher D, et al.; ReSPECT Working Group Collaborators. Development of the Recommended Summary Plan for eEmergency Care and Treatment (ReSPECT). Resuscitation 2020;148:98–107. 10.1016/j.resuscitation.2020.01.00331945422
  47. Hall CC, Lugton J, Spiller JA, Carduff E. CPR decision-making conversations in the UK: an integrative review. BMJ Support Palliat Care 2019;9:1–11. 10.1136/bmjspcare-2018-001526
  48. Compassion in Dying. Better Understanding, Better Outcomes: What We’ve Learned About DNACPR Decisions Before and During the Coronavirus Pandemic 2021. London: Compassion in Dying; 2021.
  49. Reich AJ, Perez S, Gazarian P, D’Arcangelo N, Gonzales K, Rodgers P, et al. Is this ACP? A focus group study of patient experiences of advance care planning. J Gen Intern Med 2022;37:1484–93. 10.1007/s11606-021-07208-335018570
  50. Tuesen LD, Agard AS, Bulow HH, Fromme EK, Jensen HI. Decision-making conversations for life-sustaining treatment with seriously ill patients using a Danish version of the US POLST: a qualitative study of patient and physician experiences. Scand J Prim Health Care 2022;40:57–66. 10.1080/02813432.2022.203648135148663
  51. Miller H, Tan J, Clayton JM, Meller A, Hermiz O, Zwar N, Rhee J. Patient experiences of nurse-facilitated advance care planning in a general practice setting: a qualitative study. BMC Palliat Care 2019;18:25. 10.1186/s12904-019-0411-z30841925
  52. McIlfatrick S, Slater P, Bamidele O, Muldrew D, Beck E, Hasson F. ‘It’s almost superstition: If I don’t think about it, it won’t happen’. Public knowledge and attitudes towards advance care planning: a sequential mixed methods study. Palliat Med 2021;35:1356–65. 10.1177/0269216321101583834000901
  53. Healthwatch. #ShareForBetterCare. 2023. URL: www.healthwatch.co.uk/ (accessed 8 August 2023).
  54. Gale NK, Heath G, Cameron E, Rashid S, Redwood S. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol 2013;13:117. 10.1186/1471-2288-13-11724047204
  55. Underwood M, Noufaily A, Bain C, Harlock J, Griffiths F, Huxley C, et al. Public attitudes to emergency care treatment plans: a population survey of Great Britain. BMJ Open 2024; Sep 23;14:e080162. 10.1136/bmjopen-2023-080162; PMID: 39313284; PMCID: PMC11429361.
  56. National Centre for Social Research. British Social Attitudes. URL: www.bsa.natcen.ac.uk/about/about.aspx (accessed 26 May 2023).
  57. Underwood M, Noufaily A, Blanchard H, Dale J, Harlock J, Gill P, et al. GPs views on emergency care treatment plans: an online survey. BJGP Open 2024;2023:0192. 10.3399/BJGPO.2023.0192
  58. VanGeest JB, Johnson TP, Welch VL. Methodologies for improving response rates in surveys of physicians: a systematic review. Eval Health Prof 2007;30:303–21. 10.1177/016327870730789917986667
  59. Pit SW, Vo T, Pyakurel S. The effectiveness of recruitment strategies on general practitioner’s survey response rates: a systematic review. BMC Med Res Methodol 2014;14:76. 10.1186/1471-2288-14-7624906492
  60. Bonevski B, Magin P, Horton G, Foster M, Girgis A. Response rates in GP surveys: trialling two recruitment strategies. Aust Fam Physician 2011;40:427–30. PMID: 7834009.21655493
  61. medeConnect. Solutions. 2023. URL: www.medeconnect.net/gp-omnibus.html (accessed 8 August 2023).
  62. Slowther AM, Bernstein CJ, Huxley C, Harlock J, Eli K, Mann C, et al. Using the Recommended Summary Plan for Emergency Care and Treatment (ReSPECT) in UK general practice: a qualitative exploration of the experiences of general practitioners, community-based nurses, care home staff, patients and their relatives. Br J Gen Pract 2024 Sep 20:BJGP.2024.0248. 10.3399/BJGP.2024.0248; Epub ahead of print. PMID: 39304311.
  63. National Institute for Health and Care Research. ENRICH. URL: https://enrich.nihr.ac.uk (accessed 8 August 2023).
  64. Hennink MM, Kaiser BN, Marconi VC. Code saturation versus meaning saturation: how many interviews are enough? Qual Health Res 2017;27:591–608. 10.1177/104973231666534427670770
  65. Office for Health Improvement and Disparities. National General Practice Profiles. 2023. URL: https://fingertips.phe.org.uk/profile/general-practice/data (accessed 8 August 2023).
  66. Eli K, Hawkes CA, Fritz Z, Griffin J, Huxley CJ, Perkins GD, et al. Assessing the quality of ReSPECT documentation using an accountability for reasonableness framework. Resusc Plus 2021;7:100145. 10.1016/j.resplu.2021.10014534382025
  67. Martin DK, Giacomini M, Singer PA. Fairness, accountability for reasonableness, and the views of priority setting decision-makers. Health Policy 2002;61:279–90. 10.1016/s0168-8510(01)00237-812098521
  68. Resuscitation Council UK. The ReSPECT Process: A Guide for Clinicians Completing the Plan. 2023. URL: www.resus.org.uk/sites/default/files/2023-02/ReSPECT%20Guide%20for%20Clinicians_FINAL.pdf (accessed 8 August 2023).
  69. Schellekens JE, Houtvast CS, Leusink P, Kleiverda G, Gomperts R. Dutch GPs’ views on prescribing mifepristone and misoprostol: a mixed-methods study. Br J Gen Pract 2022;72:e677–83. 10.3399/BJGP.2021.070435879108
  70. Carmody K, Rouse M, Nolan D, Quinlan D. GPs’ practice and attitudes to initiating isotretinoin for acne vulgaris in Ireland: a cross-sectional questionnaire survey in primary care. Br J Gen Pract 2020;70:e651–6. 10.3399/bjgp20X71233732784222
  71. Eli K, Harlock J, Huxley CJ, Bernstein C, Mann C, Spencer R, et al. Patient and relative experiences of the ReSPECT process in the community: an interview-based study. BMC Prim Care 2024:25:115. 10.1186/s12875-024-02283-x38632508
  72. Resuscitation Council UK. ReSPECT. URL: www.resus.org.uk/respect (accessed 25 June 2023).
  73. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006;3:77–101. 10.1191/1478088706qp063oa
  74. Davies R, Ives J, Dunn M. A systematic review of empirical bioethics methodologies. BMC Med Ethics 2015;16:15. 10.1186/s12910-015-0010-325885575
  75. Spiers G, Beresford B. ‘It goes against the grain’: a qualitative study of the experiences of parents’ administering distressing health-care procedures for their child at home. Health Expect 2017;20:920–8. 10.1111/hex.1253228195675
  76. Russell AM, Lovell JM, Harlock J, Griffiths F, Slowther A. Autonomy and advocacy in planning for a medical emergency: Adults with a learning disability and family carers experiences and perceptions of the Recommended Summary Plan for Emergency Care and Treatment (ReSPECT) process. version 2; peer review: 1 approved, 2 approved with reservation. NIHR Open Res 2024;4:8. 10.3310/nihropenres.13555.239445122
  77. National Institute for Health and Care Excellence. Impact: People with a Learning Disability. London: NICE; 2021.
  78. University of Bristol. The Learning Disability Mortality Review (LeDeR) Programme Annual Report: Norah Fry Centre for Disabilities Studies. Bristol: University of Bristol; 2018.
  79. Henderson A, Fleming M, Cooper SA, Pell JP, Melville C, Mackay DF, et al. COVID-19 infection and outcomes in a population-based cohort of 17 203 adults with intellectual disabilities compared with the general population. J Epidemiol Community Health 2022;76:550–5. 10.1136/jech-2021-21819235232778
  80. McNamara B, Same A, Rosenwax L. Creating person-centred support for people with intellectual disabilities at the end of life: an Australian qualitative study of unmet needs and strategies. J Intellect Disabil 2020;24:543–58. 10.1177/174462951882388730727802
  81. Tuffrey-Wijne I, McEnhill L, Curfs L, Hollins S. Palliative care provision for people with intellectual disabilities: interviews with specialist palliative care professionals in London. Palliat Med 2007;21:493–9. 10.1177/026921630708201917846089
  82. CHANGE. Our Services. 2023. URL: www.changepeople.org (accessed 25 June 2023).
  83. Jager A, Tewson A, Ludlow B, Boydell K. Embodied ways of storying the self: a systematic review of body-mapping. Forum Qual Soc Res 2016;17:2526. 10.17169/fqs-17.2.2526
  84. Carnemolla P, Kelly J, Donnelley C, Healy A. Reflections on working together in an inclusive research team. Soc Sci 2022;11:182. 10.3390/socsci11050182
  85. Braun V, Clarke V, Hayfield N, Terry G. Thematic Analysis. In Liamputtong P, editor. Handbook of Research Methods in Health Social Sciences. Singapore: Springer; 2019. pp. 843–60.
  86. Dent-Brown K, Wang M. The mechanism of storymaking: a grounded theory study of the 6-part story method. Arts Psychother 2006;33:316–30. 10.1016/j.aip.2006.04.002
  87. Happell B, Byrne L, McAllister M, Lampshire D, Roper C, Gaskin CJ, et al. Consumer involvement in the tertiary-level education of mental health professionals: a systematic review. Int J Ment Health Nurs 2014;23:3–16. 10.1111/inm.1202123586597
  88. SNOOP. Project SNO. 2023. URL: www.snoopcharity.org (accessed 8 August 2023).
  89. Slowther A, Bernstein C, Huxley C, Harlock J, Eli K, et al. Using the Recommended Plan for Emergency Care and Treatment (ReSPECT) in UK general practice: a qualitative exploration of the experiences of general practitioners, community-based nurses, care home staff, patients and their relatives. Br J Gen Pract 2024. In press.
  90. Robert GB. Participatory Action Research: Using Experience-Based Co-Design to Improve the Quality of Healthcare Services: Understanding and Using Health Experiences – Improving Patient Care. Oxford: Oxford University Press; 2013.
  91. Han PK, Klein WM, Arora NK. Varieties of uncertainty in health care: a conceptual taxonomy. Med Decis Making 2011;31:828–38. 10.1177/0272989x1139397622067431
  92. Vranas KC, Plinke W, Bourne D, Kansagara D, Lee RY, Kross EK, et al. The influence of POLST on treatment intensity at the end of life: a systematic review. J Am Geriatr Soc 2021;69:3661–74. 10.1111/jgs.1744734549418
  93. Mirarchi FL, Doshi AA, Zerkle SW, Cooney TE. TRIAD VI: how well do emergency physicians understand Physicians Orders for Life Sustaining Treatment (POLST) forms? J Patient Saf 2015;11:1–8. 10.1097/PTS.000000000000016525692502
  94. Mirarchi FL, Cammarata C, Zerkle SW, Cooney TE, Chenault J, Basnak D. TRIAD VII: do prehospital providers understand Physician Orders for Life-Sustaining Treatment documents? J Patient Saf 2015;11:9–17. 10.1097/PTS.000000000000016425692503
  95. Breyre AM, Sporer KA, Davenport G, Isaacs E, Glomb NW. Paramedic use of the Physician Order for Life-Sustaining Treatment (POLST) for medical intervention and transportation decisions. BMC Emerg Med 2022;22:145. 10.1186/s12873-022-00697-335948964
  96. Levoy K, Sullivan SS, Chittams J, Myers RL, Hickman SE, Meghani SH. Don’t throw the baby out with the bathwater: meta-analysis of advance care planning and end-of-life cancer care. J Pain Symptom Manage 2023;65:e715–43. 10.1016/j.jpainsymman.2023.02.00336764411
  97. Arruda LM, Abreu KPB, Santana LBC, Sales Manuela Vasconcelos de Castro. Variables that influence the medical decision regarding advance directives and their impact on end-of-life care. Einstein (Sao Paulo) 2020;18:eRW4852. 10.31744/einstein_journal/2020RW485231618287
  98. Mental Capacity Act 2005. URL: www.legislation.gov.uk/ukpga/2005/9/contents (accessed 8 August 2023).
  99. Adults with Incapacity (Scotland) Act 2000. URL: www.legislation.gov.uk/asp/2000/4/contents (accessed 8 August 2023).
  100. Mirarchi FL, Juhasz K, Cooney TE, Puller J, Kordes T, Weissert L, et al. TRIAD XII: are patients aware of and agree with DNR or POLST orders in their medical records. J Patient Saf 2019;15:230–7. 10.1097/PTS.000000000000063131449196
  101. Hickman SE, Torke AM, Heim Smith N, Myers AL, Sudore RL, Hammes BJ, Sachs GA. Reasons for discordance and concordance between POLST orders and current treatment preferences. J Am Geriatr Soc 2021;69:1933–40. 10.1111/jgs.1709733760226
  102. Lund S, Richardson A, May C. Barriers to advance care planning at the end of life: an explanatory systematic review of implementation studies. PLOS ONE 2015;10:e0116629. 10.1371/journal.pone.011662925679395
  103. Lakin JR, Gundersen DA, Lindvall C, Paasche-Orlow MK, Tulsky JA, Brannen EN, et al.; ACP-PEACE Investigators. A yet unrealized promise: structured advance care planning elements in the electronic health record. J Palliat Med 2021;24:1221–5. 10.1089/jpm.2020.077433826860
  104. Dillon E, Chuang J, Gupta A, Tapper S, Lai S, Yu P, et al. Provider perspectives on advance care planning documentation in the electronic health record: the experience of primary care providers and specialists using advance health-care directives and physician orders for life-sustaining treatment. Am J Hosp Palliat Care 2017;34:918–24. 10.1177/104990911769357828196448
  105. Millington-Sanders C, Nadicksbernd JJ, O’Sullivan C, Morgan T, Raleigh A, Yeun P, Ormerod G. Electronic palliative care co-ordination system: an electronic record that supports communication for end-of-life care – a pilot in Richmond, UK. London J Prim Care (Abingdon) 2013;5:106–10. PMID: 25949700; PMCID: PMC3960646.
  106. Finucane AM, Davydaitis D, Horseman Z, Carduff E, Baughan P, Tapsfield J, et al. Electronic care coordination systems for people with advanced progressive illness: a mixed-methods evaluation in Scottish primary care. Br J Gen Pract 2020;70:e20–8. 10.3399/bjgp19X70711731848198
  107. Wye L, Lasseter G, Simmonds B, Duncan L, Percival J, Purdy S. Electronic palliative care coordinating systems (EPaCCS) may not facilitate home deaths: a mixed methods evaluation of end of life care in two English counties. J Res Nurs 2016;21:96–107. 10.1177/1744987116628922
  108. Standing H, Patterson R, Lee M, Dalkin SM, Lhussier M, Bate A, et al. Information sharing challenges in end-of-life care: a qualitative study of patient, family and professional perspectives on the potential of an Electronic Palliative Care Co-ordination System. BMJ Open 2020;10:e037483. 10.1136/bmjopen-2020-037483
  109. Patterson R, Standing H, Lee M, Dalkin S, Lhussier M, Exley C, Brittain K. Paramedic information needs in end-of-life care: a qualitative interview study exploring access to a shared electronic record as a potential solution. BMC Palliat Care 2019;18:108. 10.1186/s12904-019-0498-231805917
  110. Health and Social Care Act 2012. Section 261. URL: www.legislation.gov.uk/ukpga/2012/7/section/261 (accessed 28 April 2024).
  111. NHS England. Digital Data Security and Protection Toolkit. URL: www.dsptoolkit.nhs.uk (accessed 28 April 2024).
  112. Tark A, Song J, Parajuli J, Chae S, Stone PW. Are we getting what we really want? A systematic review of concordance between physician orders for life-sustaining treatment (POLST) documentation and subsequent care delivered at end-of-life. Am J Hosp Palliat Care 2021;38:1142–58. 10.1177/104990912097631933251826
  113. Johnson SB, Butow PN, Kerridge I, Bell ML, Tattersall MHN. How well do current measures assess the impact of advance care planning on concordance between patient preferences for end-of-life care and the care received: a methodological review. J Pain Symptom Manage 2018;55:480–95. 10.1016/j.jpainsymman.2017.09.00828943359
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Attribution. Anne-Marie Slowther; Jenny Harlock; Celia J Bernstein; Katie Bruce; Karin Eli; Caroline J Huxley et al. (2024). Using the Recommended Summary Plan for Emergency Care and Treatment in Primary Care: a mixed methods study. National Institute for Health and Care Research. Copyright © 2024 Slowther et al. Licensed under CC BY 4.0. NCBI Bookshelf NBK608796. CC BY 4.0. Original source ↗. Text reproduced from the Bookshelf XML without changing wording; figures, images and supplements are not reproduced.

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