The study team would like to thank all the participants with SMI and diabetes, their family members and clinicians who participated in this research.
We would also like to thank the following:the members of our SSC for their invaluable support and advicethe PPI group, DIAMONDS VOICE, for their substantial input and guidanceAngela Ross, the DIAMONDS VOICE lead, for co-ordinating PPI meetings and supporting membersattendees at our co-design workshopsthe administrator for the project, Nicky Traynor, for her invaluable assistanceLyndsey Kramer for her assistance with coding the qualitative family member interview data.
Contributions of authors
Jennie Lister (https://orcid.org/0000-0002-2911-8331) (Research Fellow) attended study team meetings, completed the data analysis for the qualitative interview study (for staff members and people with SMI), supervised the analysis for family member qualitative interviews, drafted six of the eight themes in the qualitative interview study section, commented on draft versions of the report and led the compilation of the report.
Lu Han (https://orcid.org/0000-0001-7198-3380) (Research Fellow) attended study team meetings, contributed to the study design and protocol development, led the quantitative analysis of the CPRD data, wrote the draft of the quantitative interrogation of patient health records section and commented on draft versions of the report.
Sue Bellass (https://orcid.org/0000-0001-9383-4116) (Research Fellow) attended study team meetings; oversaw the protocol development; co-ordinated the PPI input throughout the study; conducted the scoping of the literature and expert consultation; collected all qualitative interview data; supervised the data analysis of the qualitative interviews with staff, family members and people with SMI; checked a random selection of qualitative interview coding during the initial stages of analysis to ensure reliability; drafted two of the eight themes in the qualitative interview study section; and commented on draft versions of the report.
Jo Taylor (https://orcid.org/0000-0001-5898-0900) (Lecturer in Applied Health Research) attended study team meetings; contributed to the study design and protocol development; assisted with PPI input; supervised the qualitative data collection and analysis of the qualitative interviews with staff, family members and people with SMI; checked a random selection of qualitative interview coding during the initial stages of analysis to ensure reliability; contributed to the draft of the qualitative interview study section; drafted the integration of quantitative and qualitative results section; and commented on draft versions of the report.
Sarah L Alderson (https://orcid.org/0000-0002-5418-0495) (Academic Clinical Lecturer in Primary Care) attended study team meetings, contributed to the study design and commented on draft versions of the report.
Tim Doran (https://orcid.org/0000-0001-7857-3704) (Professor of Health Policy) contributed to the study design, supervised data analysis for the quantitative components of the study and commented on draft versions of the report.
Simon Gilbody (https://orcid.org/0000-0002-8236-6983) (Director of the Mental Health and Addictions Research Group) attended study team meetings, contributed to the study design and commented on draft versions of the report.
Catherine Hewitt (https://orcid.org/0000-0002-0415-3536) (Deputy Director, York Trials Unit) attended study team meetings, contributed to the study design, supervised data analysis for the quantitative components of the study and commented on draft versions of the report.
Richard IG Holt (https://orcid.org/0000-0001-8911-6744) (Professor in Diabetes and Endocrinology/Consultant Physician) attended study team meetings, contributed to the study design, drafted the diabetes section of the introduction section and commented on draft versions of the report.
Rowena Jacobs (https://orcid.org/0000-0001-5225-6321) (Professor of Health Economics) attended study team meetings, contributed to the study design, supervised data analysis for the quantitative components of the study and commented on draft versions of the report.
Charlotte EW Kitchen (https://orcid.org/0000-0002-9323-0061) (Research Fellow) attended study team meetings; drafted the abstract, plain English summary and scientific summary; and commented on draft versions of the report.
Stephanie L Prady (https://orcid.org/0000-0002-8933-8045) (Senior Research Fellow, Inequalities in Health) attended study team meetings, contributed to the study design, ensured that the social inequalities framework was applied throughout the research, drafted the social inequalities section of the introduction section, contributed to the draft of the integration of quantitative and qualitative results section and commented on draft versions of the report.
John Radford (Patient and Public Involvement Representative) attended study team meetings, contributed to the study design, attended co-design workshops and assisted in assuring the credibility of the qualitative interview findings.
Jemimah R Ride (https://orcid.org/0000-0002-1820-5499) (Research Fellow) provided code for the quantitative data analysis and commented on draft versions of the report.
David Shiers (https://orcid.org/0000-0003-2531-5837) (Honorary Reader in Early Psychosis/Honorary Research Consultant/Honorary Senior Research Fellow) attended study team meetings, contributed to the study design and commented on draft versions of the report.
Han-I Wang (https://orcid.org/0000-0002-3521-993X) (Research Fellow) attended study team meetings, led the quantitative section of comparing diabetes care provision and estimating health-care costs for people with and people without SMI analysis, drafted this section of the quantitative results and commented on draft versions of the report.
Najma Siddiqi (https://orcid.org/0000-0003-1794-2152) (Clinical Senior Lecturer in Psychiatry) attended study team meetings, led the project, conceived and designed the study, supervised the study (including the data collection in the qualitative interviews), drafted the SMI section of the introduction and discussion sections and editorially reviewed all sections of the report.
Publications
Bellass S, Lister JE, Kitchen CEW, Kramer L, Alderson SL, Doran T, et al. Living with diabetes alongside a severe mental illness: a qualitative exploration with people with severe mental illness, family members and healthcare staff [published online ahead of print May 4 2021]. Diabet Med 2021.
Han L, Doran T, Holt RIG, Hewitt C, Jacobs R, Prady SL, et al. The impact of severe mental illness on healthcare use and health outcomes for people with type 2 diabetes [published online ahead of print February 10 2021]. Br J Gen Pract 2021.
Bellass S, Taylor J, Han L, Prady SL, Shiers D, Jacobs R, et al. Exploring severe mental illness and diabetes: protocol for a longitudinal, observational, and qualitative mixed methods study. JMIR Res Protoc 2019;8:e13407.
Data-sharing statement
Owing to the sensitive and confidential nature of the qualitative and quantitative data used in this study, and the access permissions required, the data are not publicly available. Any queries should be addressed to the corresponding author.
Patient data
This work uses data provided by patients and collected by the NHS as part of their care and support. Using patient data is vital to improve health and care for everyone. There is huge potential to make better use of information from people’s patient records, to understand more about disease, develop new treatments, monitor safety, and plan NHS services. Patient data should be kept safe and secure, to protect everyone’s privacy, and it’s important that there are safeguards to make sure that it is stored and used responsibly. Everyone should be able to find out about how patient data are used. #datasaveslives You can find out more about the background to this citation here: https://understandingpatientdata.org.uk/data-citation.
Disclaimers
This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health and Social Care. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health and Social Care.